And we will require all local councils to publish information like meeting minutes and local service data in a standardised format.

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This data will be updated periodically, and the Department plans to publish information on average earnings in the coming year.

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Shire says it has presented some data from its Sanfilippo studies at scientific conferences and will eventually publish the information in scientific journals.

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He estimated the researchers would need to analyze a year's worth of data and publish it to ensure it is valid before opening up the information to others.

WSJ: Families Push for New Ways to Research Rare Diseases

Lord McKenzie called on ministers to allow providers to publish their own performance data, as well as "user satisfaction" information.

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