That's why early diagnosis for this traumatic condition and support for parents is so important.
The sad thing is that most of these deaths could be prevented with early diagnosis.
Harriet Millward, deputy chief executive of the UK's Alzheimer's Research Trust, said early diagnosis was important.
Early diagnosis and treatment in men offer better protection against osteoporosis and other related conditions.
The portable device could offer a rapid early diagnosis in hospital and the community.
Early diagnosis and treatment can help prevent complications of hypoparathyroidism, some of which are permanent.
Labour MSP Dr Richard Simpson said early diagnosis could lead to more targeted therapy.
The self-knowledge that relieves Eli of my frenzied anxiety and self-doubt comes from his early diagnosis.
Work that will advance education research that supports early diagnosis for children on the Autism Spectrum.
Several peers drew attention to the role played by adverts in helping early diagnosis of serious conditions.
This could help highlight where efforts to promote early diagnosis could be best targeted to help save lives.
Chief Medical Officer Professor Liam Donaldson warned doctors that early diagnosis and treatment of the infection was vital.
An early diagnosis helps to ensure the best possible future for the child.
Early diagnosis is of paramount importance to the subsequent prognosis, treatment, quality of life and ultimate survival of cancer patients.
Oxford researchers writing in the journal Nature hope now to establish whether genetic tests can help in making early diagnosis.
Another key feature in making health care more affordable is early diagnosis, and better management of chronic disease via prevention efforts.
Besides early diagnosis, another goal is to devise tests that spot which tumors are most likely to metastasize and kill a patient.
We need services that can provide early diagnosis, early intervention, educational services.
"This has the potential to enhance the success of early diagnosis in bowel cancer, which can be vital for these patients, " he said.
Sara Hiom, Cancer Research UK's director of early diagnosis, said international comparisons were useful in helping to understand what was influencing cancer survival.
We have worked to equip Americans with the facts about diabetes through the National Diabetes Education Program, which promotes early diagnosis and effective diabetes management.
Scientists say they have, for the first time, worked out the pattern of spread of hepatitis C, showing early diagnosis is key to preventing epidemics.
It also can help in the early diagnosis of learning disabilities.
"This is likely to reduce the risk of over-diagnosis while still enabling early cancer detection among those most likely to gain from early diagnosis, " they say.
But Baroness Northover, replying for the government, resisted calls to make public campaigning for early diagnosis one of the health secretary's duties outlined in the bill.
With early diagnosis many people with heart failure are able to control their condition and live longer and fuller lives with the right combination of drugs, lifestyle and support.
Cliff Prior, chief executive of the National Schizophrenia Fellowship said that although the research is still in its early stages a tool for early diagnosis would be welcomed.
But he added the study also highlighted the need for early diagnosis, pointing out an estimated a third of people with HIV do not know they have it.
It added successful rehabilitation depended on early diagnosis and treatment.
Prof Swanton said the findings underlined the importance of early diagnosis of cancer before it had spread, and the need to target the common mutations in the 'trunk' of the cancer.
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