The Fellowship runs several programmes including writing letters to prisoners, supporting prayer groups and raising money to buy Christmas presents for the children of convicts.

BBC: Andy Taylor, Prison Fellowship

He said food banks were meeting parents who were worried about putting food on the table this Christmas, and who could not afford any presents for their children.

BBC: Food bank charity: Christmas 'bleak on breadline'

For Ms. Buckley and other patient families, that presents a daunting prospect: Should they put their children through the testing all over again?

WSJ: Families Push for New Ways to Research Rare Diseases