The money raised has been split between Royal Manchester Children's Hospital and the Cystic Fibrosis Trust.

BBC: Joe Geeling

The Cystic Fibrosis Trust said not funding the drug in Scotland would cause "dismay and heartache".

BBC: Call for cystic fibrosis drug to be available in Scotland

The Cystic Fibrosis Trust had warned patients in Wales could have been faced with a second class health service.

BBC: Cystic fibrosis x-ray

The Cystic Fibrosis Trust has submitted evidence to a health committee inquiry.

BBC: NEWS | UK | Scotland | Sufferer's free prescription call

But the Cystic Fibrosis Trust said the medicine was "transformational", had a "dramatic effect" and that experts say "no other medicine addresses the basic genetic defect in cystic fibrosis".

BBC: Cystic fibrosis: New drug Kalydeco refused for Welsh NHS

Ed Owen, chief executive of the Cystic Fibrosis Trust, welcomed the Scottish government's decision to make "additional funding available to enable Kalydeco to be made available to those that need it".

BBC: Scottish 'orphan drugs' fund launched

Kalydeco treats people who have the G551D cystic fibrosis mutation, which affects about 11% of people with cystic fibrosis in Scotland, compared with about 4% in the UK, according to the Cystic Fibrosis Trust.

BBC: Scottish 'orphan drugs' fund launched

Ivacaftor treats people who have the G551D cystic fibrosis mutation, which affects about 11% of people with cystic fibrosis in Scotland, compared with about 4% in the UK, according to the Cystic Fibrosis Trust.

BBC: Kalydeco tablets

The Joe Geeling Trust opened in 2007, a year after Joe, who had cystic fibrosis, was killed by a fellow pupil.

BBC: Joe Geeling

The trust said funding of Kalydeco should not impact on the wider funding of cystic fibrosis care.

BBC: Cystic Fibrosis Trust in Kalydeco drug plea for Wales