病人如我
· 徐兆玲: 一些代表病人的游说团体,例如“病人如我”(PatientsLikeMe)和..
PatientsLikeMe is a patient powered research network that improves lives and a real-time research platform that advances medicine. On PatientsLikeMe’s network, people connect with others who have the same disease or condition and track and share their own experiences. In the process, they generate data about the real-world nature of disease that help researchers, pharmaceutical companies, regulators, providers and nonprofits develop more effective products, services and care.